 Posted 7/18/2008 10:06:42 AM
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Hi all, I just thought I would share my story to get things started here.
I had my only son Braxton June 13 2004. He is now 4 years old.
He was delivered by C-section after 3 hours of me pushing and the doctor attempting to coax him out using the vacumme.
When Braxton turned a year old I received a phone call from the health unit. They were just doing a routine phone call checking to make sure all was well with the baby. This is when they told me that he had failed his hearing test in one ear at birth. This concerned us because my mother in law was deaf in one ear since birth. Braxton was not like the other children his age, language wise. He babbled but had no prominant sounds like mama, dada, baba. I contacted a program in our area called Language Express. Because of Braxton's age he was referred to the Infant Development Program. At age 2 he started with Language Express. This is where a speech therapist came into our home once a week and work on his speech and gave us as parents suggestions. At this point he was referred to the Child Development Program at the hospital in Kingston where we had him assessed.
At age 2 1/2 Braxton was diagnosed as Globally Delayed.
Having a diagnoses is a huge relief and very helpful in getting the help we need.
Jodi
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Posted 7/10/2009 9:59:23 PM
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| My name is Paula and I have two girls, Ainsley, my youngest is now 5 and she has sensory processing disorder and FASD fetal alcohol spectrum disorder. She is a beautiful wonderful amazing little girl, but also very challenging. Because of her prenatal circumstances, she was born compromised and adopted by us at about four months, she has a lot of difficulty with emotional regulation. If you think of Fasd as a prenatal brian injury it helps. It helps us to parent her effectively when we realize that she cannot make connections of logic and consequence that other children do. But Ainsley is very high functioning and as such receives few supports. Also as a result of the FASD diagnosis she gets very little. There is nothing in Ontario or London set up to help children with FASD. Most systems consider these kids throwaway kids. We, as adoptive parents and advocates are working to change that, but it's a long uphill battle that is exhausting. Paula http://www.thriftymommastips.blogspot.com/
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Posted 10/2/2009 8:51:38 PM
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| Hi Jodi and other moms! My son Jackson was born profoundly deaf and hasbi-lateral cochlear implants. It has been a long emotional, scary road but he speaks perfects and attends a regular school - even speaks french! Tammany Atkinson www.beeskneesbaby.com to see our story
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